Friday, August 22, 2014

More Runaround...

The past four weeks have been mostly wait and see.  

CHOICES - He was approved for the program, however, not for nursing care level.  I discovered the reason.  On August 6th, we had an appointment with his primary doctor.  I described his needs and the doctor had the nerve to say "just because he makes bad choices, doesn't mean he has dementia." Which made me laugh out loud, although I didn't mean to be rude, this was very comical to me.  When I mentioned that he was diagnosed with dementia in 2010 and the very definition of dementia is a progressive degenerative disease....he updated the most recent diagnosis to include dementia.  Not in enough time for the people at CHOICES to see it.

They declared him a level 8 and he needs a level 9 to qualify for nursing care

We now must appeal this ruling with the updated diagnosis.

In the meantime, we are still waiting on copies of his medical records.  On August 15th, I called to check the status of these records we requested nearly a month and half ago.  At first they said they don't have a record of the request, then they said they sent them out on 7/24/14 - yet we never received them.  Then she said she left a message for the clerk.  When the clerk called back, she said that WE PICKED THEM UP.  We did not.  

I called to file a complaint with a patient advocate, left a message.  It took her a week to call me back, and when she did, I missed the call.  

Growing weary.

Today we successfully faxed over the records request again.  

In the midst of all of this.  I found out I have cervical cancer stage 2.  Luckily its treatable early!

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